The girl with a will to live: the love, hope and pain of raising Elsie – my one in 163 million daughter

<p>She was born with an ultra-rare genetic disorder. After my decades working in film PR, I now face the biggest campaign of all: the fight for her life</p><p>My daughter Elsie has beautiful curls – blond like a little Botticelli cherub’s, hair that someone dark like me could only